Collectively rare diseases are anything but rare – they impact 30 million people in the US and ten times that amount globally. And 1 in 3 children suffering from a rare disease will not survive beyond the age of five.
One of the biggest challenges facing clinicians is making a quick, accurate diagnosis – on average patients visit eight physicians and receive two to three misdiagnoses before being correctly diagnosed, a process that takes US patients around 7.6 years, and is often referred to
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seizures
4 Hospitals Leveraging Social Media to Improve Patient Engagement
Social media is an essential online marketing and outreach
tool for any organization that wants to connect to the largest audience
possible. However, health organizations — like
hospitals — can face unique challenges in managing social media,
which can make effectively leveraging these tools less straightforward.
Many large hospitals have been successful in making social media work for them. As a result, they've provided a template that other healthcare
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Eisai Launches First Amazon Alexa Skill to Bring Solace & Support to Children with Epilepsy
- Eisai Inc. launches Ella the Jellyfish, the first Amazon Alexa skill designed for those affected by Lennox-Gastaut Syndrome (LGS), a rare and severe form of childhood-onset epilepsy. - LGS can be characterized by frequent and unpredictable seizures, limited speech and mobility, cognitive impairment, and developmental delays.- Available free of charge, , this unbranded Alexa skill provides comfort to children, families and caregivers through song, storytelling, meditation, and interactive
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How Consumer Technology is Influencing Healthcare Innovation
When it comes to healthcare, we look to physicians, nurses, and specialists and trust them to be the experts when it comes to our health, but we don’t typically look to them to be technology experts. In fact, the healthcare industry, especially the back office, has been historically slow to adopt new technology, relying on paper records and pagers, fax machines and even hand delivery of files and records. Many clinics are not equipped to digitally connect to another office’s patient records.
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New Apple Watch App Uses Algorithm to Detect Seizures & Alert Providers
Smart Monitor, a Silicon Valley, CA-based provider of clinically validated solutions for the management of complex chronic conditions has announced the launch of SmartWatch Inspyre for the Apple Watch. The new Apple Watch app uses a unique algorithm to recognize a wearer’s repetitive shaking movements, similar to those caused by convulsive seizures. Designated family members and care providers are alerted upon onset of these movement patterns so they can intervene in a timely manner to maximize
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