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Epilepsy

Why Families Need the Closure Whole Genome Sequencing Provides

by Haim Neerman, CEO of Variantyx 03/25/2021 Leave a Comment

Why Families Need the Closure Whole Genome Sequencing Provides

For medical practitioners expertly trained in the scientific methods of discovery, having a young patient with serious health complications from an undiagnosed condition is about as somber and frustrating as it gets. These feelings are only magnified for parents of the patient, especially when searching for a diagnosis can go on for years. This is the essence of what is known as the “diagnostic odyssey.” Honing in on a rare disease diagnosis involves thorough medical history evaluations,
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UCB Taps Medisafe to Develop Branded Digital Drug Companions for Antiepileptic Medications

by Fred Pennic 11/24/2020 Leave a Comment

UCB Taps Medisafe to Develop Branded Digital Drug Companions for Antiepileptic Medications

What You Should Know: - UCB has selected Medisafe to develop branded digital drug companions for antiepileptic medications, marking the company’s official entry into the digital therapeutics space. - The initial collaboration will primarily be focused on their antiepileptic medications, but they are exploring its use for additional brands.  Medisafe, a leading digital therapeutics company specializing in digital companions, has been selected by UCB to develop branded digital
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Eliminating the Long, Cumbersome and Costly Diagnosis of Genetic Diseases

by Christine Stanley, Ph.D.,Chief Director of Clinical Genomics for Variantyx 07/01/2020 Leave a Comment

Eliminating the Long, Cumbersome and Costly Diagnosis of Genetic Diseases

The answer to questions about human disease can be found in our genes. The difficulty in the past has been the testing process, a sort of trial and error approach of drilling down into the multitude of variants that can be found within the genes, variants that when analyzed in tandem with detailed clinical histories can actually tell the story and lead to a faster diagnosis. Human beings carry around 20,000 genes and, of those, approximately 5,000 are somewhat understood, and those genes can
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Cleveland Clinic Appoints Inaugural Chief Research Information Officer

by Fred Pennic 01/07/2020 Leave a Comment

- Lara Jehi, M.D., has been appointed the inaugural Chief Research Information Officer at Cleveland Clinic. - As part of her role as Chief Research Information Officer at Cleveland, Dr. Jehi will work closely with information technology, research, finance, and other key departments to optimize the enterprise’s digital infrastructure to support research activities and accelerate new treatments for patients. Lara Jehi, M.D., has been appointed the inaugural Chief Research Information
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Eisai Launches First Amazon Alexa Skill to Bring Solace & Support to Children with Epilepsy

by Fred Pennic 11/12/2019 Leave a Comment

Eisai Launches First Amazon Alexa Skill to Bring Solace & Support to Children with Epilepsy

 - Eisai Inc. launches Ella the Jellyfish, the first Amazon Alexa skill designed for those affected by Lennox-Gastaut Syndrome (LGS), a rare and severe form of childhood-onset epilepsy. - LGS can be characterized by frequent and unpredictable seizures, limited speech and mobility, cognitive impairment, and developmental delays.- Available free of charge, , this unbranded Alexa skill provides comfort to children, families and caregivers through song, storytelling, meditation, and interactive
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MyHealthTeams Lands $9.44M to Expand Social Networks for Chronic Condition Communities

by Jasmine Pennic 08/15/2019 Leave a Comment

MyHealthTeams Raises $9.44 Million

MyHealthTeams, a San Francisco, CA-based creator of the largest and fastest-growing social networks for people facing chronic health conditions raised $9.44 million in a Series B financing round led by strategic investor UCB, a global biopharmaceutical company. This financing brings total investment in MyHealthTeams to $26.84M, building on the company's Seed and Series A1, A2 and A3 rounds. Existing investors including Adams Street Partners, Qiming US Ventures, CVS Health, The Westly Group,
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UCLA Spin Out DEARhealth Lands $6M for AI-Powered Pathways for Chronic Care

by Fred Pennic 07/17/2019 Leave a Comment

UCLA Spin Out Dear Health Lands $6M for AI-Powered Pathways for Chronic Care

DEARhealth, a health IT spin-out from the University of California, Los Angeles (UCLA) has raised $6.8 million in Series A funding to expand its AI-powered pathway platform for chronic care. Participants in the Series A funding round include Philips Health Technology Ventures, Vesalius Biocapital III and Health Innovations. DEARhealth was founded in 2011 by Daniel Hommes as a research project when a team of UCLA specialists designed a value-based care program for the management of chronic
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Partners Connected Health, UCB Partner to Develop Digital Health Solutions Support People Living With Epilepsy

by Fred Pennic 10/12/2017 Leave a Comment

Partners Connected Health, UCB Partner to Develop Digital Health Solutions Support People Living With Epilepsy

Partners Connected Health and biopharmaceutical company UCB has announced an innovative collaboration to explore and develop novel digital health solutions to further improve the lives of people living with epilepsy. The goal of the collaboration is to provide better connectivity between patients, healthcare providers, and payors, delivering improved experiences and better treatment outcomes. Collaboration DetailsUsing UCB's experience and research in epilepsy and extensive ethnographic
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