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Clinical Data Registries: Essential, Yet Underutilized Due to Data Challenges

by Fred Pennic 09/27/2024 Leave a Comment

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What You Should Know: 

– A recent survey conducted by Carta Healthcare, a company dedicated to advancing healthcare through clinical data, has revealed a concerning reality: while clinical data registries are deemed crucial for improving care quality and population health management, their effectiveness is being hindered by challenges related to data accuracy, completeness, and inadequate sponsor tools.

– The survey, conducted by Reaction Data in June 2024 among clinical data abstractors, highlighted the critical role of registries in evaluating care quality and population health outcomes. 

Registries: A Cornerstone for Quality Improvement

The survey reveals that clinical data abstractors, responsible for collecting and managing this data, overwhelmingly recognize the value of clinical registries. 75% of respondents confirmed that their organizations primarily use registry data for quality and process improvement, while 50% leverage it to support population health initiatives.

Data Accuracy and Completeness: The Roadblocks

However, the study also highlighted concerning obstacles. Data inaccuracies (50%), data completeness (40%), and manual data entry (40%) were cited as major barriers hindering the effectiveness of registries.

Inadequate Registry Sponsor Tools

Although 80% of clinical data abstractors are aware of the tools and resources provided by registry sponsors, a significant proportion (38%) lack access to them, and 50% rarely or never utilize them. This points to a persistent issue of workflow inefficiency and missed opportunities for these skilled professionals.

Other Key Findings:

  • 90% of clinical data abstractors expressed only moderate satisfaction or no opinion regarding clinical registry tools from sponsors.
  • 50% reported physicians as the primary users of registry data, emphasizing its importance in clinical decision-making.
  • 58% indicated that quality/process improvement and informing treatment decisions are the main applications of registry data within their organizations.
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