• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to secondary sidebar
  • Skip to footer

  • Opinion
  • Health IT
    • Behavioral Health
    • Care Coordination
    • EMR/EHR
    • Interoperability
    • Patient Engagement
    • Population Health Management
    • Revenue Cycle Management
    • Social Determinants of Health
  • Digital Health
    • AI
    • Blockchain
    • Precision Medicine
    • Telehealth
    • Wearables
  • Startups
  • M&A
  • Value-based Care
    • Accountable Care (ACOs)
    • Medicare Advantage
  • Life Sciences
  • Research

Nebula Gives Users Ownership Of Their Personal Genomic Data with Oasis Integration

by Jasmine Pennic 10/02/2020 Leave a Comment

  • LinkedIn
  • Twitter
  • Facebook
  • Email
  • Print
Nebula, Oasis Labs Integrate to Give Users Ownership of Their Personal Genomic Data

What You Should Know:

– Nebula Genomics announces integration with Oasis Labs to give its customers full ownership and control of the data received from their comprehensive genome sequencing tests.

– Through Oasis Labs’ unique privacy solution Parcel, Nebula’s users will be able to retain ownership and control of their personal genomic data. Data remains confidential, and users can grant access to their data for specific use cases such as generation of reports offered by Nebula or analysis by researchers. 


Nebula Genomics, a privacy-focused personal genomics company, announced today that it will partner with Oasis Labs, a data privacy software company, to bring a new standard for responsible data use in the personal genomics industry and provide consumers with first-of-its-kind control of their genetic data.


Why It Matters

From massive data breaches to sales of private data, users and companies are more concerned than ever with keeping personal health information private and secure. For example, nearly 80% of respondents in a recent Pew Research study noted concern of how businesses were using consumer data. Sensitive information can take the form of electronic medical records, and more recently, personal genomic data.

While direct-to-consumer genetic testing companies have opened up an entirely new world of information on ancestry and disease risk for individuals, many have come under fire for violating user privacy and breaching user trust. Many incidents have been reported over the past years. For example, one genealogy company was affected by a security breach that compromised personal information of tens of millions of users, and another DNA testing company became subject of an investigation by the Federal Trade Commission over its policy for sharing genetic data.

“Those issues have raised widespread privacy concerns that have significantly slowed down the growth of the entire genetic testing industry,” said Nebula Genomics founder and Professor of Genetics at Harvard Medical School, George Church. “This is a big problem because personal genomics can create a lot of value for the individuals who get tested. Furthermore, if the data is shared with researchers it will enable us to better understand human genetics and possibly help cure diseases.”

Nebula Genomics was founded on the principles of delivering a privacy-first genetic test to market, and now in partnership with Oasis Labs, the company is taking things one step further. Through Oasis Labs’ privacy-preserving technology and the Oasis Network, a decentralized blockchain, Nebula customers can retain full control over their personal data and manage how their data can be accessed and used. This means that users will be able to keep their data to themselves if that’s what they want. More importantly, however, the technology enables much more secure and controlled data use, for example for biomedical research.

“Most people want to contribute to biomedical research, but at the same time are often deterred by privacy concerns. We expect our technology will enable something completely novel to consumers: enabling both privacy and controlled data use at the same time,” said Dawn Song. 

Retain Ownership and Control of Personal Genomic Data

Through Oasis Labs’ unique privacy solution Parcel, Nebula’s users will be able to retain ownership and control of their personal genomic data. Data remains confidential, and users can grant access to their data for specific use cases such as generation of reports offered by Nebula or analysis by researchers. 

Each time a user’s genome is analyzed — whether it is to provide reports to the user or for medical research — Oasis verifies the user’s permission against an immutable ledger. Then, with the user’s permission, the analytics function and encrypted genomic data is loaded into an isolated, blackbox computation environment called a Secure Enclave. Using a Secure Enclave to run analysis helps ensure that no one can peak at a user’s genetic information during the computation. Nebula users are able to receive reports and, in the future, share data access with researchers while keeping their personal genomic data confidential and protected.

Nebula’s users will be able to monitor access to their data via an Oasis app, which will maintain a log of every action taken with their data on the Oasis Network. 

  • LinkedIn
  • Twitter
  • Facebook
  • Email
  • Print

Tagged With: blockchain, dna, DNA Testing, genomic data, genomics, medical records, risk

Tap Native

Get in-depth healthcare technology analysis and commentary delivered straight to your email weekly

Reader Interactions

Primary Sidebar

Subscribe to HIT Consultant

Latest insightful articles delivered straight to your inbox weekly.

Submit a Tip or Pitch

Featured Insights

 Selecting the Right EMR: A Practical Guide to Streamlining Your Practice and Enhancing Patient Care

Selecting the Right EMR: A Practical Guide to Streamlining Your Practice and Enhancing Patient Care

Featured Interview

Virta Health CEO: GLP-1s Didn’t Kill Weight Watchers, Its Broken Model Did

Most-Read

Beyond the Hype: Building AI Systems in Healthcare Where Hallucinations Are Not an Option

Beyond the Hype: Building AI Systems in Healthcare Where Hallucinations Are Not an Option

Health IT Sector Navigates Policy Turbulence with Resilient M&A

Health IT’s New Chapter: IPOs Return, Resilient M&A, Valuations Rise in 1H 2025

PwC Report: US Medical Cost Trend to Remain Elevated at 8.5% in 2026

PwC Report: US Medical Cost Trend to Remain Elevated at 8.5% in 2026

Philips Launches ECG AI Marketplace, Partnering with Anumana to Enhance Cardiac Care with AI-Powered Diagnostics

Philips Launches ECG AI Marketplace, Partnering with Anumana to Enhance Cardiac Care with AI-Powered Diagnostics

WeightWatchers Emerges from Bankruptcy, Launches New Menopause Program

WeightWatchers Emerges from Bankruptcy, Launches New Menopause Program

CMS Finalizes New Interoperability and Prior Authorization Rule

CMS Proposes 2026 Physician Fee Schedule Rule: Boosting Primary Care, Cutting Waste, and Modernizing Payments

Beyond SaaS: How Agent as a Service is Transforming Healthcare Automation

Beyond SaaS: How Agent as a Service is Transforming Healthcare Automation

New Strategies Needed: No Surprises Act and the Challenges for Payors with Provider Data Inaccuracies

Samsung Acquires Xealth to Accelerate Connected Care Vision

Samsung Acquires Xealth to Accelerate Connected Care Vision

AI Dominates Digital Health Investment in First Half of 2025

Rock Health Report: AI Dominates Digital Health Investment in First Half of 2025

Secondary Sidebar

Footer

Company

  • About Us
  • Advertise with Us
  • Reprints and Permissions
  • Submit An Op-Ed
  • Contact
  • Subscribe

Editorial Coverage

  • Opinion
  • Health IT
    • Care Coordination
    • EMR/EHR
    • Interoperability
    • Population Health Management
    • Revenue Cycle Management
  • Digital Health
    • Artificial Intelligence
    • Blockchain Tech
    • Precision Medicine
    • Telehealth
    • Wearables
  • Startups
  • Value-Based Care
    • Accountable Care
    • Medicare Advantage

Connect

Subscribe to HIT Consultant Media

Latest insightful articles delivered straight to your inbox weekly

Copyright © 2025. HIT Consultant Media. All Rights Reserved. Privacy Policy |